Advocacy Award

You may remember last year that WCSUK became a partner in the One Team One Goal worldwide coalition building campaign to unite gyneacological oncology practice and advocacy groups.

We are very pleased to announce today that we have recently has been honored with One Team One Goal Advocacy Champion (Europe) Award.

 Debra and I are extremely honoured to receive this award.

Support - when its needed, on your terms!

When I started Womb Cancer Support UK back in April 2011, I did so because I didn't want other women going through womb cancer to feel as alone and scared as I had been 16 months previously when I was diagnosed.
I was diagnosed on 23rd Dec 2009 and had my hysterectomy on 25th Jan 2010. I got my pathology results 3 weeks later and was then told that there were cancer cells still present and I would need chemotherapy and radiotherapy.

Thats when it hit me. Originally my Consultant had said he was 99.9% sure they could remove all the cancer through the hysterectomy - it was only when the pathology results came back and showed that there were cancer cells present in the stomach wash they did, did I realise that 99.9% wasn't good enough!

Cancer aside, the hysterectomy was the best thing I ever did. It put an end to over 30 years of extremely heavy, irregular and painful periods - sometimes lasting several weeks at a time.
So the thought of never having to worry about that again was great.
But being told that I was going to be pumped full of toxic chemicals, and have my hair fall out; and then have to go through 5 weeks of being irradiated every day scared the life out of me!!!

I didn't know anyone who had cancer; there was no history of it in my family. I had no one to talk to about it.
I live on an island off the west coast of Scotland and when I got my diagnosis, I was the only one on the island with womb cancer. I joined the local cancer support group but it was full of women with breast cancer and at 46, I was the youngest there by a good 15 years.

I felt scared, isolated and alone.

I was lucky enough to get (and still have) regular visits from a wonderful Macmillan nurse who has helped my immensely throughout the past 3 years.

When my treatment eventually ended in July 2010, a week before my 47th birthday, I felt cast adrift. My security blanket of regular visits to hospital and all the tests had gone.

Again, I felt alone. I expected my health to improve slightly after the end of the treatment. I had suffered with severe diarrhoea for the whole 5 weeks of radiotherapy aswell as cystitis but this lasted for several weeks after and indeed I now have long term bowel problems as a result of the treatment.

Ever since I got my diagnosis I spent ages scouring the internet looking for information about womb cancer. Anything - treatment options, side effects, causes; symptoms.
I looked for support groups - there weren't any specifically for womb cancer patients. I used the forums on the Macmillan website and joined a US based support group on Facebook but it still felt like there was something lacking.

And thats where WCSUK came in. After a chat with a fellow womb cancer patient that I had met through FB I decided to start my own womb cancer support group!

The rest, as they say, is history!!

https://www.facebook.com/WombCancerSupportUK